Congenital Heart Disease: Caring for Your Child

Overview

Caring for a child who has congenital heart disease can be challenging. But there are things you can do to make sure that your child is as healthy and comfortable as possible, whether they are at home or in the hospital. And while you're taking care of your child, remember that it's important to take care of yourself too.

At home, care focuses on:

  • Helping your child eat enough.
  • Giving medicines.
  • Preventing infections.
  • Helping your child be active.
  • Helping your child have a good quality of life.

It may be hard to get your child to eat enough. There can be many different reasons for this. For example, some children may get tired while eating, so they may eat less.

Heart medicines can be very strong. They can be dangerous if they aren't given the right way. Follow any instructions for giving medicines exactly as prescribed. Ask your doctor or pharmacist if you're not sure about how much medicine to give and how to give it.

To prevent infections, make sure that your child gets the recommended childhood vaccines. To prevent an infection in the heart, be sure your child takes good care of their teeth and gums. And your child may need antibiotics before certain dental procedures to help prevent a heart infection.

Most children can exercise without limitations. Your child's doctor will let you know if your child needs to avoid certain types of activities.

If your child needs oxygen at home, your child's doctor will prescribe the amount your child needs. Learn about the oxygen equipment and any precautions about its use. Know when you need to give your child oxygen.

When your child is in the hospital, bring some of their familiar things such as favorite toys or blankets. Talk with the nurses about any special habits or routines. This may include any special words that your child may use to describe their wants and needs.

It's also important to take care of yourself both physically and emotionally. Staying healthy will help you take care of your child. Joining a support group might be helpful. It's a good way to meet other parents who have a child with congenital heart disease. They can offer support and answer questions.

Support groups can be a source of emotional support. But you may also find counseling useful. It can help you understand and deal with the wide range of emotions you may feel.

Information about Congenital Heart Disease: Caring for Your Child

Current as of: July 31, 2024

Author: Ignite Healthwise, LLC Staff

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